Mailing Lists and E-Lists

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CHARGE Syndrome
This list is for parents, families, professionals and consumers with CHARGE Syndrome. It gives the reader information about the disability, specialists information, conference information, and contacts in the field. www.CHARGEsyndrome.org

DB Techies
The DB Techies newsletter is for deafblind, blind, and partially sighted people. The aim of the DB Techies is to try to inform deafblind people about what is new in the high tech world. To subscribe to this electronic discussion group via the web, go to Yahoo Groups. To subscribe to this list via e-mail, send a blank e-mail message to: dbtechiessubscribe@yahoogroups.com If you have difficulty subscribing, contact the list owner James Gallagher at dbtechies-owner@yahoogroups.com

DBTeens
A private deaf-blind discussion list for teenagers and young adults with the purpose of sharing information, inquiries, ideas, and opinions about deaf-blindness and other issues. This is a private list for teenagers and young adults. To subscribe, contact owner Randy Klumph for subscription information. klumphr@wou.edu

Deaf-Blind Education Mailing List (DBED-L)
The topic of this list is deaf-blind education. The purpose of this list is to share information, inquiries, ideas, and opinions. This list is open to all persons interested in issues regarding deaf-blind education.

Deaf-Blind Mailing List (Sordoceguera) Spanish
This list is entirely in Spanish and is for deaf-blind people, families, volunteers, professionals, investigators, and educators. Hosted in Spain by RedIris, a Spanish academic and investigation network. To subscribe to this list, send your first and last name in the ody of a message with the subject SUBSCRIBE to listserv@listserv.rediris.es

Deafblind Guide Dog Users
This list is for deafblind guide dog users and puppy raisers whose dogs have been passed to a deafblind handler, or those who have a friend who is deafblind and is using a guide dog. This list focuses on deafblindness and guide dogs. If you are interested or want more information contact: guidedogs4ever@hotmail.com To subscribe, send a blank message to db-gdog-users-subscribe@yahoogroups.com For assistance, contact the owner at db-gdog-users-owner@yahoogroups.com

Deafblind Women Chat List
This list aims to support women who live with the daily challenges of deafness and blindness. Issues discussed may include fashion and relationships. But most importantly this list is for all deafblind women to support each other. To subscribe to this electronic discussion group via the web, go to Yahoo Groups. To subscribe to this list via e-mail, send a blank e-mail message to: dbwomenchat- subscribe@yahoo groups.com. If you have difficulty subscribing, contact the list-owner Michelle Stevens at dbwomenchat-owner@onelist.com

Great Plains Deafblind List (Great Plains DB)
This list is a support group of people, families, and professionals from the Helen Keller National Center Region #7 - The Great Plains Region (KS, MO, NE, and IA), who share common experiences and interests with individuals experiencing various types and causes of deafblindness. While the topics, discussions, and issues may frequently change according to the given needs and/or desires of the list's subscribers, all discussions should primarily relate to giving support to people experiencing and/or in some way connected to deafblindness. To subscribe, send a blank email to: GreatPlainsDBList-subscribe@topica.com Or subscribe online at www.topica.com/lists/GreatPlainsDBList/

National Family Association for Deaf-Blind List
This list is for parents and families. To join, send a blank e-mail to nfadb@mailservice.cpd.usu.edu making sure that the word "subscribe" is in the subject line.

Refsum's Disease Mailing List
Refsum's Disease is a recessive genetic disorder and is characterized by retinitis pigmentosa, anosmia, peripheral neuropathy, hearing loss, and less commonly, congenital abnormalities. To subscribe, send a blank message to refsums_discussion-subscribe@yahoogroups.com For assistance, contact the list owner: refsums_discussion-owner@yahoogroups.com

Retinal Degeneration Discussion List (RPLIST)
This list is an internet forum for discussion, questions and opinions related to retinal degeneration. To subscribe to this list, send the following in the body of an e-mail message (leave the subject line blank) Send to listserv@maelstrom.stjohns.edu or contact the list owners for assistance rplist-request@maelstrom.stjohns.edu

RP Fresh Sight
The members of RP-Friends created RP Fresh Sight out of necessity. No other site existed where teens, pre-teens, and slightly post-teens could exchange information, share with others the difficulties of dealing with Retinitis Pigmentosa (RP) and similar visual disorders on a day-to-day basis, to have fun, and support each other in a safe and private environment. To subscribe, send a blank message to: RP_Fresh_Sight-subscribe@yahoogroups.com For assistance, contact the list owner: RP_Fresh_Sight-owner@yahoogroups.com

Rubella Discussion List (HKNC_Rubella)
This group has been established as a vehicle for parents, consumers and professionals to share information about any aspect of rubella and to provide support to those living or working with someone with congenital rubella syndrome. To subscribe send a blank e-mail to HKNC_Rubella-subscribe@yahoogroups.com