Mailing Lists and E-Lists
To submit an entry for this topic, please use this form to tell us about it.
CHARGE Syndrome
This list is for parents, families, professionals and consumers with CHARGE Syndrome. It gives the reader information about the disability, specialists information, conference information, and contacts in the field.
DB Techies
The DB Techies e-mail discussion list is for deafblind, blind, and partially sighted people. The aim of the DB Techies is to try to inform deafblind people about what is new in the high tech world. To subscribe to this electronic discussion group, send an e-mail to: dbtechies-subscribe@topica.com or visit: http://www.topica.com/lists/dbtechies
DBTeens
A private deaf-blind discussion list for teenagers and young adults with the purpose of sharing information, inquiries, ideas, and opinions about deaf-blindness and other issues. This is a private list for teenagers and young adults. To subscribe, contact owner Randy Klumph for subscription information. klumphr@wou.edu
Deaf-Blind Education Mailing List (DBED-L)
The topic of this list is deaf-blind education. The purpose of this list is to share information, inquiries, ideas, and opinions. This list is open to all persons interested in issues regarding deaf-blind education.
Deaf-Blind Mailing List (Sordoceguera) Spanish
This list is entirely in Spanish and is for deaf-blind people, families, volunteers, professionals, investigators, and educators. Hosted in Spain by RedIris, a Spanish academic and investigation network. To subscribe to this list, send your first and last name in the body of a message with the subject SUBSCRIBE to listserv@listserv.rediris.es
Deafblind Women Chat List
This list aims to support women who live with the daily challenges of deafness and blindness. Issues discussed may include fashion and relationships. But most importantly this list is for all deafblind women to support each other. To subscribe to this electronic discussion group via the web, go to Yahoo Groups. To subscribe to this list via e-mail, send a blank e-mail message to: dbwomenchat- subscribe@yahoo groups.com. If you have difficulty subscribing, contact the list-owner Michelle Stevens at dbwomenchat-owner@onelist.com
Great Plains Deafblind List (Great Plains DB)
This list is a support group of people, families, and professionals from the Helen Keller National Center Region #7 - The Great Plains Region (KS, MO, NE, and IA), who share common experiences and interests with individuals experiencing various types and causes of deafblindness. While the topics, discussions, and issues may frequently change according to the given needs and/or desires of the list's subscribers, all discussions should primarily relate to giving support to people experiencing and/or in some way connected to deafblindness. To subscribe, send a blank email to: GreatPlainsDBList-subscribe@topica.com Or subscribe online at www.topica.com/lists/GreatPlainsDBList/
National Family Association for Deaf-Blind List
This list is for parents and families. To join, send a blank e-mail to NFADB-SUBSCRIBE-REQUEST@TR.WOU.EDU.
National Federation of the Blind, Sports and Recreation Division
The purpose of this listserv is to provide an interactive forum for interested persons to discuss openly the participation of individuals with blindness in sports and recreational activities. It provides network opportunities with others so that persons with blindness are not limited by common misperceptions and attitudes about them when they participate in sports--competitive or otherwise. To post a message to this group, send an e-mail to sportsandrec@nfbnet.org
Refsum's Disease Mailing List
Refsum's Disease is a recessive genetic disorder and is characterized by retinitis pigmentosa, anosmia, peripheral neuropathy, hearing loss, and less commonly, congenital abnormalities. To subscribe, send a blank message to refsums_discussion-subscribe@yahoogroups.com For assistance, contact the list owner: refsums_discussion-owner@yahoogroups.com
Retinal Degeneration Discussion List (RPLIST)
This list is an internet forum for discussion, questions and opinions related to retinal degeneration. To subscribe to this list, send a blank message to rplist-subscribe-request@listserv.icors.org
RP Fresh Sight
The members of RP-Friends created RP Fresh Sight out of necessity. No other site existed where teens, pre-teens, and slightly post-teens could exchange information, share with others the difficulties of dealing with Retinitis Pigmentosa (RP) and similar visual disorders on a day-to-day basis, to have fun, and support each other in a safe and private environment. To subscribe, send a blank message to: RP_Fresh_Sight-subscribe@yahoogroups.com For assistance, contact the list owner: RP_Fresh_Sight-owner@yahoogroups.com
Rubella Discussion List (HKNC_Rubella)
This group has been established as a vehicle for parents, consumers and professionals to share information about any aspect of rubella and to provide support to those living or working with someone with congenital rubella syndrome. To subscribe send an e-mail to HKNC_RUBELLA@TR.WOU.EDU