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Babies Count Project: Leave No Babies Behind


Babies Count

Information about the prevalence of visual impairment in children is not collected in any systematic or consistent way. Agencies that do collect data utilize differing criteria that result in conflicting and widely disparate estimates of the population. Data are particularly lacking for children between the ages of birth and 36 months, where changes in the incidence rates of visual impairment, as well as changes in specific visual diagnoses, have important implications for program development, evaluation, personnel preparation, in-service training, and funding.


The mission of this project is to establish a national registry of young children, ages birth to 36 months, by working with public and private agencies to collect standardized epidemiological and demographic data on young children with visual impairments. All data are coded to assure confidentiality of children and families.


An accessible on-line database allows for easy training for states and agencies wishing to participate in this project. Training is offered at APH, on site at participating agencies, and on-line.

Contact Linda Lyle for additional information. E-mail email hidden; JavaScript is required, or use the contact form at the Babies Count website.